Our Children


     Surrounding the question for children undiagnosed

 

Home     About Us     Connect     Our Children     Support Cause     Diagnosis Search

In the News

August 1st 2011 / Text Story
Victoria Anne Nelson, a 7-year-old battling mystery illness. She suddenly fell ill and suffered a mild stroke.
July 26th 2011 / Text Story
Dr. David Robertson estimates that Vanderbilt sees anywhere from 50 to 100 patients a year that, like Darian, are suspected of having a new, unrecognized illness. There are even more patients with rare identified diseases.
July 22nd 2011 / Text Story
Little Jayda is suffering from an undiagnosed neuro-muscular condition which leaves her practically unable to use her muscles and she has to be fed through a tube.
June 24th 2011 / Text Story
Cole is five and the family still does not have a diagnosis for his medical issues.
May 23rd 2011 / Text Story
Doctors have finally found answers over why seven-year-old, Melody Brook, was struck down by a mystery illness which left her disabled.
May 21st 2011 / Text Story
4 year old Brynlea is suffering from an undiagnosed metabolic-gastrointestinal disorder.
May 20th 2011 / Text Story
9-year-old, Jocelyn Jones, Rochester girl with an unknown medical condition has taken a turn for the worse
April 18th 2011 / Text Story
Doctors don’t know what the root cause of Donovan Charlong's medical mystery.
February 19th 2011 / Text Story
10 year old Jordon struggles with various medical issues with no diagnosis.
January 19th 2011 / Text Story
40 year old Benjamin Button looks like a child and Gabby Williams, 6 years old is the size of an infant.
December 26th 2010 / Text Story
Emerson Strojny, 5 years old with an uncertain future. All sorts of tests and still no diagnosis.
December 18th 2010 / Video Clip
Nicholas Volker, 4 years old faces a baffling illness. Doctors pioneer a DNA technique.
December 17th 2010 / Text Story
Harriet Gregory, 19 months old with a mystery illness. Her family hopes to use stem cell from brother umbilical code blood.
November 28th 2010 / Text Story
Aidan Bowie, 9 years old has been a mystery to his doctors since he was born.
November 25th 2010 / Text Story
Laura, 3 years old may have the same mystery illness that caused the death of her brother.
November 19th 2010 / Text Story
Katie Blackmar, 23 years old has an undiagnosed illness that has allowed her only 16 days out of the hospital.
November 18th 2010 / Text Story
Cole, 4 years old has an undiagnosed illness that requires him to be in and out of the hospital often.
October 27th 2010 / Text Story
Malcolm Bear, 8 years old has a condition that has baffled his doctors. Swelling that causes is lower have to be larger.
October 25th 2010 / Text Story
Jacob Darley, six, is still undiagnosed after five years of scans and tests, giving him an uncertain future.
October 19th 2010 / Text Story
Reece, who turns 5 next month, suffers from a series of symptoms that have baffled specialists.
October 14th 2010 / Text Story
Jack has an undiagnosed syndrome and attends a specialist school.
October 2nd 2010 / Text Story
Parents of Jack, who died at 16 months old, are still searching for reasons why a year after his death.
October 2nd 2010 / Text Story
Brooke Hankins, 20, suffers from an undiagnosed syndrome that threatens her immune system and white blood cells.
September 19th 2010 / Text Story
Jason Egon is 7 and enjoys running in marathons with his dad. Doctors can't figure out why he can't walk or talk.
August 28th 2010 / Text Story
Harriet Gregory's mystery illness has prompted her parents to search internationally  for help.
August 19th 2010 / Text Story
Doctors suspect a rare metabolic condition is behind 3 year old Maddie's dystonia.
July 21st 2010 / Text Story
Reece baffles doctors with his recurring skin sores, internal bleeding, asthma and fevers up to 106 degrees.
July 15th 2010 / Text Story
The doctors call her their ‘mystery girl' as they can’t seem to find out what is wrong with her, says the mother of 20 month old Katey.
June 28th 2010 / Text Story
21 year old Lizzie suffers from a rare, undiagnosed medical condition which has left her with a skeletal frame even though she eats up to 60 times a day.
June 24th 2010 / Text Story
Ethan has a series of problems, which have no known diagnosis and have stumped his doctors
May 25th 2010 / Text Story
Abbi, 19 months old loses battle with same neurological condition that claimed sister
May 18th 2010 / Text Story
Kate is medically fragile but they can't put a name or a reason to it. There is a new program to help children like Kate, those with an undiagnosed disease.
May 13th 2010 / Video Clip
Jocelyn started with a fever a week before her first birthday now she is an 8 year old who is bed bound.
May 4th 2010 / Video Clip
Mackenzee is 21 months old who has a condition that has baffled doctors.
April 28th 2010 / Text Story
2 1/2 year old Ellie has an illness that no one can explain. Her random fevers and inability to walk, talk, hold her head straight or sit up for any length of time have ultimately baffled them all,
April 9th 2010 / Text Story
Kain has baffled doctors ever since he was born at 31 weeks weighing just 3 lbs 3oz. At age 10 he is still the size of a toddler.
April 7th 2010 / Text Story
Fiona suddenly stopped breathing after sporadic spells of flu-like symptoms in the weeks before. From there, she has declined, she stopped walking, talking, sitting and she's not holding her head up. But every test (doctors) have done has been normal.
April 3rd 2010 / Text Story
Savannah West looks like a typical happy baby though she battles daily against an unknown illness which is having a drastic impact on her life. At seventeen months old she suffers from frequent seizures, struggles to see and her tiny muscles are so weak that she is unable to even sit up unaided.
March 18th 2010 / Text Story
The diagnosis of Levi was a syndrome so rare it is simply referred to as the unknown syndrome. Levi was born mentally handicapped as well as a cleft pallet ears that require hearing aids and the syndrome also affects the growth and maturation process that limits his mobility and flexibility.
March 9th 2010 / Text Story
At age 2, Eli Jenkins does not talk, crawl or walk. He has trouble swallowing and cannot feed himself. He takes medication to control seizures. Paige, now 4½-years old, was born healthy and developed normally until the age of 10 months, when she came down with a fever and suffered a seizure.
March 3rd 2010 / Text Story
Eli was born with a cleft lip, undescended testes, two hernias and heart problems. 12 months later he remains undiagnosed.
October 22nd 2009 / Text Story
Jack was born on June 6, 2008, a healthy little boy, but at three-months-old he stopped putting on weight and was constantly vomiting.
October 14th 2009 / Text Story
Top doctors are trying to diagnose the condition that has left the courageous two-year-old, James Fewster-Smith, facing a number of operations that could shape his life.
October 9th 2009 / Text Story
Three year old Maddox has an undiagnosed syndrome that has not allowed "normal" growth along with his medical condition of Scoliosis, curvature of the spine.
October 8th 2009 / Text Story
The 17-month-old Ruby is suffering from an undiagnosed gastric disorder, which in spite of repeated invasive testing, remains a mystery.
October 6th 2009 / Text Story
19 year old Jessie suffers from an undiagnosed illness that affects her speech and motor skills and is making her eyes cross.
August 20th 2009 / Text Story
Sierra recently has been diagnosed with generalized anxiety disorder and post-traumatic stress disorder stemming from an undiagnosed illness that has caused her to be hospitalized several times a year since she was an infant.
 
 

News Coverage

 

 
  July 4th 2011 / Text Story
Nic Volker's is a medical mystery, spending more than 700 days in the hospital with a gut disease doctors couldn't diagnose.
 

 

     
  June 21st 2011 / Text Story
Leah has a mystery illness and a team of 40-odd doctors have been unable to figure out what is making her sick. She suffers from seizures and they, in turn, are making it hard for her to breathe. She’s had a battery of tests, including blood work and spinal taps.
 

 

     
  April 13th 2011 / Text Story
Kael Landry appears to be a healthy, happy young boy. But at 13 months old, he's developmentally behind and still wears clothes made for 3-month-old babies.
 

 

     
  March 3rd 2011 /  Text Story
Doctors have been unable to diagnose 6-year-old Luke Akerstrom's condition.
 

 

     
  February 23rd 2011 / Update April 23rd 2011 Text Story
12 month old Joseph has an undiagnosed condition. Family try's to get him treatment.
 
 
     
  January 19th 2011 / Text Story / Text Story
3 year old Chase Britton is missing his entire cerebellum.
 

 

     
  January 19th 2011 / Text Story
40 year old Benjamin Button looks like a child and Gabby Williams, 6 years old is the size of an infant.
 

 

     
  November 8th 2010 / Text Story
Brent Barnett, 11 years old is undergoing a barrage of medical tests at the NIH Undiagnosed Disease Program.
 

 

     
  August 20th 2010 / Text Story
Kylie McPeak, attends the Undiagnosed Disease Program
 

 

     
  August 20th 2010 / Text Story
Update on Christian Susko
 

 

     
  August 10th 2010 / Text Story
Update on Paige Bourhill
 
 

 

 
     
  July 21st 2010 / Text Story
Three-year-old Christian Susko has been in a coma for 40 days, but doctors have been trying to untangle his medical mystery for two years
.
 

 

     
 
April 6th 2010 / Text Story
Colin Raye's granddaughter passes away. Haley suffered from a neurological disorder which had not been correctly diagnosed during her short life.
 
 
     
  February 12th 2010 / Text Story
Nine-year-old Tiffany Searle from American Fork has a disease that has baffled doctors for years. Although they still have no official diagnosis, they are quite certain Tiffany has a short time to live.
 

 

Video Courtesy of KSL.com

     
  July 8th 2009 / Text Story
But at 10 months, Paige came down with her very first cold, had a seizure, and was never the same.
 
     
  January 1st 2009 / Text Story
Lorna was born full-term, bot only weighed four pounds thirteen ounces. Right away her mom noticed differences, unique ears that fold over, a small head, and a hole in her heart at about four months. Then gradual developmental problems, delays in speech and physical development.
 

 

     
 
October 23rd 2005 / Text Story
12 year old Brooke is still the size of an infant, the doctors have never seen another like her. They have labeled her with an unknown syndrome.
 
            

Visit msnbc.com for breaking news, world news, and news about the economy

MEDICAL DISCLAIMER - SWAN USA offers the information on this Web site for general educational purposes only. This information should not be used for diagnosis, nor should it be considered a replacement for consultation with a healthcare professional. If you have questions or concerns about your health, please contact your healthcare provider.

Copyright © 2006-2011 Syndromes Without A Name USA, All Rights Reserved
1745 Lorna Ln, Otsego 49078
Phone: (269) 692-2090 Toll Free (888) 880-7926