Whitley

March, 22
2006 -
March 2009

 
 

Signs & Symptoms
 

Birth
- Premature delivery at 5 weeks
- 5 lbs
- All labs normal
- In NICU for 3 days due to low blood sugar and jaundice
- In nursery for two weeks due to poor suck/swallow
- APGHAR 8 and 9
 
Build / Stature
-Weight 27 lbs at two years old
-36 inches long
Ears
- Normal and has passed all hearing tests
Eyes
- Normal but considered to have CVI
- does not track objects
 
Head
- Microcephaly
 
Mouth
- Late teeth eruption
- Oral feedings for a year and a half
- Discovered food aspiration in May 2008
- 100% g-tube fed June 2008
Development
- Normal development up to 6 months of age and then stopped
- Low muscle tone
- Does not walk, sit unsupported, communicate in any way
- Sensory issues
 
Laboratory Test and Findings
- Metabolic - normal
- Chromosomal - normal
- Micro Array - normal
- MRI-indicates a thin corpus collusum (sp) and atrophy of the white matter
- EEG- no seizures
*Her twin sister is developing above average.
 

Contact: Kim mom to Whitley at onlyberlo@comcast.net

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