This is a clinical research program through the National Institute of Health (NIH) and is held at the NIH Clinical Center in Bethesda Maryland.

• Multiple Specialist Team approach

• Need a referral from a doctor

• Will review records and determine acceptance

• May ask for more information

• If accepted, will cover cost of travel and lodging

• Will attend up to a week

• The visit will be individualized per patient

• A diagnosis may not be found

• Main page from the Undiagnosed Diseases Program .. Go to

• NBC Nightly News .. Go to

• New York Times article of a personal account of the program .. Go to

• Blog posts of a families account of the program .. Go to

• NewScientist Article .. Go to

• CNNHealth Article .. Go to