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As an
organization we will strive to:
· Promote
policies that will improve the quality of
life, health, and welfare of those lacking a
diagnosis.
· Provide
educational information, programs and support
through our newsletter, emails, online support
group, and website.
· Help
patients and their families obtain benefits, support
services, insurance
coverage, and medical programs.
· Create
a database of undiagnosed syndromes that can
be used by physicians as a tool for identifying
“unique” conditions.
· Connect
with international groups to raise public awareness
and understanding of children living with
undiagnosed disorders.
· Create
a network of medical professionals who can offer
advice, support, or help. |