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Syndromes Without A Name USA (SWAN USA) is a non-profit tax exempt organization that offers support, information and advice to families of children living with a syndrome without a name. They are often described in many different ways such as; undiagnosed syndrome, unknown diagnosis, mystery diagnosis

What is a Syndrome?

 A Syndrome is a group of signs, symptoms, or features that occur together and create a picture which may suggest the presence of a particular medical condition or disorder.

Symptoms are subjective evidence of a medical condition that are experienced by a patient and reported in the medical history such as pain, nausea, or dizziness.

Signs are objective evidence of a disorder that a physician or nurse can recognize during a physical examination such as wheezing, visual impairment, or a seizure.

Signs + Symptoms = Syndrome
? + Syndrome = Syndrome Without A Name

 
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Exome Sequencing Give Away

Partnering with SWAN USA to help families with Free Whole Exome Sequencing

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Helping SWAN USA reach out to families to provide Free Whole Exome Sequencing

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Read
Undiagnosed Children Factsheet

Undiagnosed Disease Program
 Launched by the
National Institute of Health


Researching Undiagnosed Conditions

The CAL Undiagnosed Diseases Research
 and Collaboration Act of 2013

Reintroduced 2013

Syndromes Without A Name USA (SWAN USA) partners with Rare Genomics Institute (RGI) to help families have more opportunities in getting whole genome sequencing.


 

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MEDICAL DISCLAIMER - SWAN USA offers the information on this Web site for general educational purposes only. This information should not be used for diagnosis, nor should it be considered a replacement for consultation with a healthcare professional. If you have questions or concerns about your health, please contact your healthcare provider.

Copyright 2006-2014 Syndromes Without A Name USA, All Rights Reserved
1745 Lorna Ln, Otsego MI 49078
Phone: (269) 692-2090 Toll Free (888) 880-7926