Our Children



Home     About Us     Connect     Our Children     Support Cause     Diagnosis Search

Undiagnosed Day 2014

April 25th



Syndromes Without A Name USA (SWAN USA) is a non-profit tax exempt organization that offers support, information and advice to families of children living with a syndrome without a name. They are often described in many different ways such as; undiagnosed syndrome, unknown diagnosis, mystery diagnosis

What is a Syndrome?

 A Syndrome is a group of signs, symptoms, or features that occur together and create a picture which may suggest the presence of a particular medical condition or disorder.

Symptoms are subjective evidence of a medical condition that are experienced by a patient and reported in the medical history such as pain, nausea, or dizziness.

Signs are objective evidence of a disorder that a physician or nurse can recognize during a physical examination such as wheezing, visual impairment, or a seizure.

Signs + Symptoms = Syndrome
? + Syndrome = Syndrome Without A Name

SWAN USA Flyer         SWAN USA Brochure


Subscribe to our mailing list

* indicates required


Subscribe to
 E-Support Group

Powered by us.groups.yahoo.com
Enter Now!
Exome Sequencing Give Away

Partnering with SWAN USA to help families with Free Whole Exome Sequencing

Learn More

Global Genes Rare Toolkit
Becoming An Empowered Patient:
A Toolkit For The Undiagnosed

Global Genes Rare Toolkit
Genetic Testing: Is This My Path To A Diagnosis

Photo Contest

Undiagnosed Children Factsheet

Undiagnosed Disease Program
 Launched by the
National Institute of Health

Researching Undiagnosed Conditions

The CAL Undiagnosed Diseases Research
 and Collaboration Act of 2013

Reintroduced 2013

Syndromes Without A Name USA (SWAN USA) partners with Rare Genomics Institute (RGI) to help families have more opportunities in getting whole genome sequencing.




MEDICAL DISCLAIMER - SWAN USA offers the information on this Web site for general educational purposes only. This information should not be used for diagnosis, nor should it be considered a replacement for consultation with a healthcare professional. If you have questions or concerns about your health, please contact your healthcare provider.

Copyright 2006-2014 Syndromes Without A Name USA, All Rights Reserved
1745 Lorna Ln, Otsego MI 49078
Phone: (269) 692-2090 Toll Free (888) 880-7926