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Through the dedication of a mother who
lost her child to an undiagnosed disease, a bill has reached
our government. The bill will allow for the CDC to create a
registry, to guide the communication of undiagnosed
diseases.
These are some key facts
about the proposed bill. To learn more about the bill visit
the links to the right.
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The
Secretary, through Center for Disease Control and
Prevention (CDC)shall establish and maintain a undiagnosed disease
registry.
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The
Secretary shall include in the registry the information
that they
deem appropriate, relating to undiagnosed diseases.
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The
information will be public, but will not publicly
disclose
identifiable information or trade secrets.
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There
will be designated $5,000,000 for 2010 and may be needed
for
following years of 2011 through 2015.
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The
Health and Human Services shall see that it becomes
operational no
later than a year after enactment.
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